|
 The Leukemia & Lymphoma Society BBS
 Newly Diagnosed
 New dx of CML-scared to death!!
|
 UBBFriend: Email This Page to Someone! |
next newest topic | next oldest topic |
| Author | Topic: New dx of CML-scared to death!! |
|
LauraB523 Member |
posted 02-08-2008 09:21 AM
   
Hello everyone! I am a 27 y.o mom of one who was just dx'd with CML back on 1-2-08. This after being hospitalized for just some N/V and abdominal pain. Come to find out my WBC's were 49,000!!! Went through the holidays in agony waitng for my genetics test to come back. Never in a million years thought it would be cancer!! I am on Gleevec 400 mg...actually now I am on a chemo break b/c my WBC's plummeted down to 2,000 so I am awaiting next blood test to see what new dose is. So, does anyone have any advice or coping skills to pass along? I have some good days but also some bad. Just a lot to deal with right now!! Thanks and God Bless to all! 
IP: Logged |
|
prljm10us Member |
posted 02-08-2008 09:38 AM
hello i was dx 01/31/2006 my wbc count was 360,000 and i ran a fever and had abdominal pain when i went to the hospital. things are much better now as far as the side effects of the drugs and stabilizing of the blood counts. as far as coping goes i pretend it doesn't exist to a point i mean i take my med's and go to the doctors but other than that i try not to give it too much of my life. something you have that i didn't is these people at this wonderful website. so your already a leg up on me! good luck! IP: Logged |
|
laura c Member |
posted 02-12-2008 06:28 AM
good morning laura,im so sorry your going thru this battle,but know your in the right place to find support and answers to your questions.i dont know much about cml,i was dx with non hodgkins lympoma in feb.06.coping comes along with the territory,somehow we do cope,day by day.somedays are eaiser than others,but there isnt much we can do but fight the battle everyday,and beleive me it is doable.there are bad days,not feeling well,even depressing days of feeling bad for ourselves,but we get over those and go on.this is a great site for you to be on,you will find so much support,we are lucky to have each other.having cancer puts us in a different world from other people,we gain a sense of fighting spirit that maybe we didnt have before.i know i am a completely different person than i was 2 years ago,i like me better now than i did than.its like a new world has opened up for me,this might sound crazy,but somehow a whole new layer of life has been added to me.i wish i could write better than i do,put my thoughts into words easier.but just know its ok to feel whatever you happen to be feeling at any moment,the bad moments get over,if you feel things get to overwhelming seek help with a therapist,there are meds to help you do..good luck laura..you can do this. love and prayers, laura IP: Logged |
|
emily_loveshim Member |
posted 02-13-2008 06:56 AM
Heyy. I'm Emily. I'm 14 years old and i was just diagnosed about 2 months ago. My white blood cell count was 106,100. I never thought that I would have this in a million years. IP: Logged |
|
emily_loveshim Member |
posted 02-13-2008 06:58 AM
i meant my wbc count was 160,000. Haha. IP: Logged |
|
flyjod2007 Member |
posted 02-26-2008 04:33 PM
Hi! I was diagnosed on January 8, 2008. I am taking 400 mg of Gleevec. My numbers are in the normal range after only 32 days!! IP: Logged |
|
scoonie1 Member |
posted 02-26-2008 08:14 PM
Laura, I do not know much about CML (my dad had AML), but I just wanted to post and wish you strength as you go through this experience. Greta IP: Logged |
|
leonard Member |
posted 02-27-2008 09:08 PM
i feel like a old timer in this forum... laura KEEP YOUR CHIN HIGH all will be well///i had cml since 6---2006///take my 400 mg gleevec each day..and feel really great/// stay positive// leonard IP: Logged |
|
seejayd Member |
posted 02-28-2008 09:23 PM
Dear Laura, I was also diagnosed with CML around the same time as you; approx. 1/6. I went to ER w/what I thought was a bad flu..long story short..I had acute phneumonia, with several other complications. When the blood results showed WBC 1.2 million!! I was totally flabberghasted and so tired from being in the hospital for so long, that I wouldn't let anyone do anymore test on me. Well...my oncologist became my guiding angel! He called me at home, I agreed to see him at his office, and we began a wonderful working relationship. My blood count is almost normal, and I'm almost in remission! Sometimes I tell myself that this whole thing was/is a joke, because I also have Lupus. This chatroom is amazing! I got so many responses from people saying things that continue to impact me in positive ways, and got information that helped make me proactive. Its a great feeling. Take one day at a time! You can write to me if you want..I'm here still resting and recovering from the phneumonia...and waiting to hear from you! Sincerely, CJ IP: Logged |
|
0deadyet Member |
posted 03-22-2008 01:42 AM
i was dxed 5 years ago , 370k ,my spleen was really big, i did lose 40 pounds before i went into the doc, i didnt really know i was sick but when i could feel my spleen, ( i didnt know it was my speen at the time) i knew something was wrong. i went in for a yearly check up. when the doc went out and called another doc in to feel my "mass" i knew something was wrong. IP: Logged |
|
DutchPower Member |
posted 03-22-2008 04:48 PM
Hi Laura, Sorry to say welcome to the CML Club (we're very selective!!). Not the greatest news I know, I'm about a month ahead of you. For my story see http://mycml.blogspot.com Fire off any questions you might have, there are some awesome experts (myself EXcluded) to be found on the CML Section as well Cheers, Rob IP: Logged |
|
Anthony11647 Member |
posted 03-24-2008 11:54 AM
HI Laura I was dx with cml back in feb/07. i am a 45 yr old man. that is/was very active until this thing. I dont want to say I feel sorry because that brings on pity and we dont need that but I do have empathy because I do undrstand what you are going thru. just like many of us here. Needless to say I was in shock. I had no one to turn to to help as far as what is this and how do I get rid of it. I quickly learned we cant get rid of it, but what we can do is learn to live with it and continue to function to the best of our ability. to have forums like this that reach out to people and give support something that saved me from myself. I have now signed up for school "medical Assistant" but i would like to concentrate in the hematology aspect. this will keep my mind busy as well as keep me focused on getting better. I have switched my Gleevec 4oomg everyday to at night before I go to bed this way I can stay up in class and not feel so tired. as well I am around my family and they give me great support when I'm tired they comfort me they let me do lots of things on my own but when they see I am struggling they pitch in thats great. The body pains and joint pains that I feel are managable. I try to ignore them when they hit and keep on but when it becomes too much I just relax until I can deal. "keeping busy as much as you can" can and will make a difference. Tank God for this chat room it is botha a great experience and learning tool for all of us even those that do not have any signs or sypmtoms. this can help people like family and friends understand what we are going thru and give them the tools to help us help ourselves. I am wishing you the best. Remeber we have to stay strong if not for ourselves then lets do it for out loved ones aned other people who will be diagnosed with any form of cancer to be able to support and educate people. inturn it will make your progression a litle easier. "Each One Teach One" Wishing you the best IP: Logged |
All times are ET (US) | next newest topic | next oldest topic |
  |
|
Contact Us | The Leukemia & Lymphoma Society | Privacy Statement
Ultimate Bulletin Board 5.47e